This has been the week from HELL ! – and it is just Tuesday ! My mom had her biopsy today and the doctor could tell by the look of the mass that it is definitely cancer. My mom told her oncologist, Dr. Robert Reid, LAST YEAR that there was a suspicious place on her right breast. He ordered an ultrasound of it and he never followed up with her to say that it was a problem or to order further test. In that regard, I fault my mom because she should stay on top of her own health and healthcare. Depending on the stage and whether this cancer has spread elsewhere, that oncology center can expect a malpractice and medical negligence suit coming their way ! I do not play when it comes to my family and will fight to the death to make sure they are well.
My mom, sisters and I are all very down about this. We will know more on Friday after the biopsy results are in. A petscan is being ordered as well. I would dare to pray that this mass is benign, but the way things have been going lately with prayers and hoping, I am scared to even venture there… just being brutally honest ! I have no choice BUT to trust that God has this all in His plan and satan IS a liar and this is already worked out.
In other news, I spoke with my clinic today and we reviewed my last cycle and agree that it did not go well. The RE who owns the clinic is aware that my RE was on vacation while I was stimming and that I was not at all happy with the response my body had with this past cycle and had major concerns regarding autoimmune issues I seem to be having.
Dr. Kiltz was very understanding and reviewed my chart and last two cycles while I was speaking with him and he was very receptive to the autoimmune protocol Dr. Braveman suggests, as he is big proponent of autoimmune protocols and how they benefit patients. He revamped my protocol and I started today with an estrogen priming protocol which involves taking Estrace 2mg twice a day for 3 weeks and on week 3 adding Edometrin progesterone suppositories. I am also to take Lupron prior to starting stims. My med doses have been changed to 300 gonal-f and 300 menopur and I will be taking Lovenox and baby aspin after retrieval, my prednisone will be upped to 20mg a day and I will be doing neupogen injections daily starting at stims and my intralipids will done weekly as opposed to every 28 days. I am very happy with the care and concern the doctors at CNY are giving to my case and Dr. Kiltz assured me that CNY is only here to help patients and he very much feels that we will get this right and get me to the end zone !
I am feeling very good about my upcoming cycle and am elated that Dr. Kiltz, Dr. Grossman and Dr. Ditkoff are equally as caring and concerned about me as a patient and a person. It means EVERYTHING when your doctors HEAR you and come up with a game plan to get you to where you need to be and are no afraid to shake things up at all if it means the patient wins !!
I have referred about 12 people to CNY in Albany who have either already started treatment or will be starting soon and I have a renewed faith in why I referred patients there to begin with. They are really showing themselves to be a class act and a center not driven by making money, but actually by making babies and patients happy. Custom service oriented businesses ALWAYS go to the top of the list in my book !
NOW, to get my mom well AND put another grandchild in her arms ! Oddly enough, with this next cycle, should I get to the finish line, my baby(ies) will be born in July (my birth month AND my mom and newest niece’s)- How incredibly kewl is that? 🙂
I will keep you updated as I go through this cycle. I am truly grateful for all the kind sentiments and words of encouragement I have received from you all ! You have NO idea how much this has meant to me as I struggle along this journey to motherhood. You all GET IT! That makes all the difference in the world ! SMOOCHES !!